Wednesday, December 20, 2023

My Christmas Card


 

Monday, December 11, 2023

It's been Six Months

 Time does not bring relief; you all have lied   

Who told me time would ease me of my pain!   

I miss him in the weeping of the rain;   

I want him at the shrinking of the tide;

The old snows melt from every mountain-side,   

And last year’s leaves are smoke in every lane;   

But last year’s bitter loving must remain

Heaped on my heart, and my old thoughts abide.   

There are a hundred places where I fear   

To go,—so with his memory they brim.   

And entering with relief some quiet place   

Where never fell his foot or shone his face   

I say, “There is no memory of him here!”   

And so stand stricken, so remembering him.

~ Edna St. Vincent Millay




Tuesday, November 21, 2023

"Grief"

"Grief’s a bastard. 

Turns up no notice on the doorstep whenever 

moves in doesn’t shower doesn’t shave 

won’t do dishes 

dirty laundry 

eats badly spends hours in the bathroom 

keeps you awake half the night 

shows no consideration 

puts a filter on all the views 

no matter how sunny it gets 

the place still looks like shit. 


Grief’s a bastard. 

Talks long distance drinks too much overmedicates can’t finish a book 

keeps flipping channels mutes the sound 

turns down the colour 

’til it’s all washed out 

faded away. 


Grief will travel anywhere in the world to be with you 

nothing too extravagant for Grief 

can take the whole sky 

paint it bloodred demolish cities 

call down storms 

turn forests to sawdust 

punch holes in mountain ranges 

bedroom doors. 


Speaks for you 

whether you like it or not 

even though there’s nothing left to say 

and no words left to say it with 

roars furious flails around 

when you ask him how things are the fucker tells you 

trails along behind on walks 

dead-eyed pathetic shuffles 

’til you wait up and turn 

taking a deep breath 

knowing what’s coming. 


Gets old acts distant suddenly doesn’t call for weeks 

then comes over with too much whiskey and a bag of crappy 

skunkweed just to keep you on your toes. 

Jumps you in an alley after a movie 

and while he’s beating you says 

we must keep working on this relationship."

by Geoff Inverarity 


Monday, November 20, 2023

"Death, be not proud"

 A few nights ago I had a dream. Rob wanted to watch a film and I was running around the house like a madwoman. The toilet was leaking. There were all kinds of things falling apart. Why wasn’t he helping me? I woke suddenly and saw the bathroom light was on and the door was slightly ajar and my first thought was that Rob was in the bathroom and I called out to him and then realized it couldn’t be Rob. What do I do with all the questions I want to ask him? 

I am obsessed with death but I am not frozen. I did go to Paris - the second show. I saw a couple of my favourite designers and I was able to focus and send good notes and pictures to the store. I made a quick trip to Vancouver and saw the lawyer working on Rob’s estate and the bank who are dragging their heels and not transferring money from Rob’s retirement fund to me because of my name. I signed Barbara Yvonne Young and they asked me to change it to Barbara Y Young and still they stumbled. Finally a few weeks ago, they asked me to take out the Y… and still they haven't transferred the funds. This is my life right now - erasing Rob’s name from all our joint possessions. How I hate it. 

I didn’t expect to be in such pain over the grouchy old man with whom I’ve lived with since I was 19 years old. I didn’t expect the hell I’d experience in a Casablanca hospital and then in Albi. Brendan flew over and then Michael and finally Gilly so I was never alone. We were with Rob every day, holding his hands, exercising his arms and legs, hoping for a miracle. We didn’t get one. In the end, he died alone at 10:30 at night. I sent a message to the hospital doctor last week, asking how he died. He responded almost immediately: 

"I don't have precise information about his last hours but on the last nurse's visit, he was breathing the same way as in the afternoon (without warning signs). His death was very sudden, maybe by the way of a cardiac trouble or a pulmonary embolism but we can't be sure. The night nurse found him already dead. I'm pretty sure he didn't suffer at least."

Gill and I heard that he had died the next morning. We dressed quickly and went to the hospital. I went in first and touched his cold body - I was shocked at how icy cold it was in the warm room.  I kissed his cheek. I talked a little and said good-bye. My only thought was that Rob wasn’t there. 

On a happier note, I am flying to San Francisco and then catching a shuttle to Carmel on the first of December for a month to be with Gill and family. Brendan with his family will join us on December 22nd. I might go to Mexico in February for a birthday party for the friend whom I’ve known the longest and then I must spend a little time with my family in Ontario. I can only plan one trip at a time as my thoughts are foggy and come out in bursts, staccato, and not always coherently. I am scared, sometimes, that I’ve lost my ability to think clearly, to write, to live my final act with grace. In the lawyer’s office, she asked me what I was going to do now and, from somewhere deep inside me, I said “I want to do something extraordinary”. I have no idea what that is.

Thursday, September 14, 2023

Tragic Head

I have washed two jackets of Rob’s and the murdering shoes he wore when he fell. I’m putting them in the charity bin. (I am moving very slowly even though I feel the need to get everything in order.) I have also decided to do the last Paris market at the end of the month but with a much reduced load. I am taking along a younger friend. She will hopefully stop me from doing something stupid. I am doing stupid things all the time and, according to Didion,  that’s normal during this year of magical thinking. Still I don’t like it. 

Oh a happier note, for the past few weeks I’ve been doing Tai Chi on the Esplanade at 7:30 every morning. This is a discipline or rather martial art that I’ve always wanted to learn. Some kindly spirit must have decided that I've suffered enough and so sent an American artist teaching at a school in the village who is also an advanced student of Tai Chi. He kindly allowed me to join a number of his art students. The damn shingles refuse to vacate my head so I am struggling to keep up and balance on one leg but still I persevere. At the very least, it gets me up and dressed in the morning. (The art teacher is taking a week off between classes and so I am trying to memorize the moves with the help of a YouTube video.)

Everyone seems to be dying or complaining about the ailments of old age. How I hate it but am I any better? I went for a picnic and to an art gallery last Sunday with Susan (who just turned 95) and David (13 years younger) and the picnic in the rose garden was pleasant enough but after, wandering through the halls and rooms of the old abby (Beaulieu-en-Rouergue), the only painting I noticed was one nicknamed by the artist’s wife “Tragic Head”, a watercolour executed with long quick brushstrokes with, what appears to me, hollow eye sockets and a dissolving mouth. Death, fucking death, takes whoever it damn well pleases.

Sunday, September 03, 2023

Literally Crazy

“Grief turns out to be a place none of us know until we reach it. We anticipate (we know) that someone close to us could die, but we do not look beyond the few days or weeks that immediately follow such an imagined death.... We might expect if the death is sudden to feel shock. We do not expect this shock to be obliterative, dislocating to both body and mind. We might expect that we will be prostrate, inconsolable, crazy with loss. We do not expect to be literally crazy, cool customers who believe their husband is about to return and need his shoes.” ― Joan Didion, The Year of Magical Thinking

I have had a couple of bad days. No, I have had a lot of bad days. I cannot write. I cannot sort myself out. Today, Fauci caught a little bird and put her under the dining room table. At first, I thought the bird was dead and then it flew to the window and Fauci flew after it. I screamed at the damn cat to leave the bird alone. I ran to the window and opened it and the little bird flew away. A sigh of relief. I usually yell for Rob to come to the rescue but he is not at home. If he were, he'd be proud of me. 

Monday, August 21, 2023

"Brief Glimpses of Beauty"

Brendan gave me the article below to read when we were in Casablanca. At first I found it annoying because of the constant repetition and then I fell into it and began to like it as it forced me to slow down and absorb the writer's "masterpiece of nothing". And yet this "nothing" essay allows me to catch "brief glimpses of beauty" in the horrible images that plaque me from the past few months. For instance, I untied Rob's left wrist, tied so tightly it left red welts, and he slowly raised his arm to his forehead, palm upward - a true Rob gesture - his release was a glimpse of beauty. And when I untied his other arm and he raised it and placed his hand over his heart  - another Rob gesture - especially when his fingers started moving to the beat of the music that Brendan or Michael or I played near his ear. - that was another brief but exquisite glimpse of beauty. 

I have been alone in our house for a week. I listen for Rob to awake in the morning. My head pounds. (The shingles are still playing havoc with the nerve endings in my head.) I know he is not coming back but I cannot touch his stuff. His shoes still sit by the door. His clothes sit on shelves and hang in his closet. All his electronic gear rests in his office. His ashes sit on my bookshelf in my office. 

As I was moving ahead... (magazine article by Jonas Mekas)

If this link doesn't work, please copy and paste: http://www.ocec.eu/cinemacomparativecinema/pdf/ccc03/ccc03_documentos_mekas_eng.pdf

Tuesday, August 01, 2023

Grief

 

































I wake up every morning with a headache and I am incapable of doing anything until I take a pain killer. My brother-in-law Bill says that it's the shingles working their way out of my system and not to worry if my head feels as if it is exploding. 

Yesterday, Brendan, Jane and Seb flew home and left me all alone. I wrote the above thank-you and then ate cold sausage and cheese. Food does not inspire me. Nothing inspires me. I keep seeing images of Rob in a hospital bed and try to think what I could have done differently. If I'd known that he would die no matter what I/we did, could I have made his passage less painful? 

At the Love Fest or what I call his wake, I spoke of our meeting and early days and there was much laughter. This surprised me. I didn't think I was funny.


Toronto with Rob

Rob and I met, in 1968, at Ryerson in the Radio and Television Arts program. There were 27 guys in our class. 2 girls.  It was not love at first sight.

Between classes, six or seven of us would hang out in the cafeteria, often joined by Scott MacDonald a journalism student who must have found us RTA students more fun than his fellow journalists.

Rob was just one of the guys - fun to banter with, good for a laugh, and always easy to be around. But I did not recognize him as the one with whom I would share my life.

And then one day, I spied him on the subway. He was half way down the car, standing, shirt sleeves rolled up and one hand gripping an upper bar to steady himself. I found myself staring at his naked forearm, softly furred, and a shiver ran through my body. I was too naive to recognize that shiver for what it was.

Rob, a number of years later, wrote a story about our first days. At first, he called me "a pretty girl without attitude".  When he asked if I wanted to hang out at the cafeteria, I often responded,:"sorry I have to go home and wash my hair" or "I have a dance class to teach". He thought that I was way too speedy for him; and yet, he wrote: "Think I'm falling for her."

When I told him one day that I had to go and practice my typing. He said he would come with me as he had to practice his. I didn't know that he took typing in high school and technical school and worked for six months as a typist.

When finally I agreed to go on a date with him, he wrote:

Honest Ed's. I need a shirt. This is a decent one and it's only 99 cents. Getting ready for the play. Christ, it has no buttons on the cuffs. It's a fucking cuff link shirt. Almost time to leave, I'll just roll up the sleeves. A play and then a meal. More money that I've spent in six weeks! But it's worth it. Can't believe she is going out with me!!!

At the end of the evening, he kissed me and I was hooked. A few months later, Rob wrote: She has sort of moved in with me on Sudan St. A commune that doesn't really work. Do any of them? 

Finally our own place on Earle St. We are reading Leonard Cohen and one thing led to another. Sue has come to pick her up but we're making love. We can't stop. Sue keeps knocking but we don't care.

Maitland Street is more like a home. When I ask her to marry me, she breaks out laughing. But she does say yes. Yeah!!!!!

Rob didn't know that for three days after his proposal, I agonized. Having read Simone de Beauvoirs "Memoire of a Dutiful Daughter, I had sworn that I would never marry. And then something curious happened - something that has only happened a few times in my life - on the third day, I was overcome with such calm, such peace that I knew marrying this man was good. 

We married in my parents' back garden. My mother planned the wedding as neither Rob nor I cared about the ceremony itself. He was still a struggling student at Ryerson so he borrowed a suit and bought an orange shirt. By that time, I had switched to York University into their new theatre and dance program, and my mother insisted on making me a dress - she was afraid that I'd go to the church in my usual attire - leotards and jeans. At my mother's insistence, we had three bridesmaids -  my sister in law, my third sister and a university friend.  Bev, at six years old, was our flower girl. In the evening, Rob and I caught an overnight train to Montreal, a gift from Rob's boss.

Rob was working part-time at Spence Thomas Productions. Patrick, not only gifted him with a solid knowledge of sound, he taught Rob how to handle the most difficult situations with grace. He was a gentleman. Every night when Rob left work, Patick would thank him. Later Rob credited him with his success although he noted that the Welshman was not a good business man: he often forgot to bill his poorer clients. 

When Rob began working as a  location sound mixer for W5, we moved to Garnock Street. Rob was worried that he travelled too much and so we got a dog called Manny to keep me company.

A year or so later we moved to Bonfield Street in the Beaches - our last home in Toronto. The day after our move, Rob took off to Chile for three weeks. We were both lonely.

Financially we were doing well. We bought a new Toyota Corolla but when, we asked a salesman to come to the house to demonstrate a [countertop] dishwasher, we looked at each other appalled. Even though we both hated doing dishes - we had sworn that we would not tie ourselves down with stuff, not become too materialistic.   


The lease was up on our apartment and we were planning to drive across Canada and visit Rob's sister. Three weeks before our holiday to Vancouver, I said "Let's just quit our jobs and move there?" Rob agreed. So we left our well-paid jobs, crammed our Toyota with our personal stuff, a tent and camping gear, and drove across the country. 


… like a bird on the wire
Like a drunk in a midnight choir
[We] have tried in [our] way to be free


Today, my sister Maggie arrives and we will hopefully be able to reach the right person and unravel more of our financial affairs. 

Friday, June 30, 2023

How am I?


 I still feel unreal as if this is a bad dream, a preparation for the future but not now. Thoughts of Rob keep invading my head. Good ones and not so good ones… and I will not deify him. Most of the time but not all the time, he was easy to live with. I’m sure he’d say the same of me. Once upon a time, I asked him why he loved me and he said because you are never boring. I took that as a great compliment. 

Recently, we were on a plane together and we both liked aisle seats so we sat across from each other. I was watching some stupid comedy and laughed outloud and then realized where I was and covered my mouth. Rob looked over at me. Later, he told me that, when I laughed, he was overcome with love for me. He thought that’s my wife. I loved him for telling me. So many memories. We had a good life together on the whole. And now his ashes are in a cylinder and I hate it… fuck, fuck, fuck… There is a line in a poem by Irish writer, Paula Meehan - “I’d like to leave you in love’s blindness… never mentions how I stumble into the day,/ fucked up, penniless, on the verge of whining/ at my lot.” 

I feel fragile. Of course, I do. I am managing to clean up papers, sort through his pills and ointments - he had a remedy for every small and large ailment - and take care of legalities. The car is now just my car. I hate that I am erasing him, tidying up his space… 

Friday, June 16, 2023

I cannot bear the pain...

 

As Rob lay in his hospital bed, he gave many signs that he knew his family were standing guard. He squeezed his sons' hands, he pulled at his daughter's hair, and one morning when he arrived in Albi, free of needles and tubes, he reached his arm up, drew Yvonne's face to his and kissed her on the lips. 


This poem is by the Canadian poet, Alden Nolan, from a small town in New Brunswick, like Rob:





This is What I Wanted to Sign Off With


You know what Im
like when I`m sick: Id sooner
curse than cry. And people dont often
know what theyre saying in the end.
Or I could die in my sleep.

So Ill say it now. Here it is.
Dont pay any attention
if I dont get it right
when it is for real. Blame that
on terror and pain
or the stuff theyre shooting
into my veins. This is what I wanted to
sign off with. Bend
closer, listen, I love you.


Au revoir, my love



Brendan will read this for me at the Crematorium. I want to go but I cannot. The last month and a half have worn me down. I would dissolve and I selfishly do not want to share my grief for this man with whom I've shared around 55 years, a man who drove me round the bend and yet is the love of my life, a sound man. 


https://vimeo.com/836608420/69bdf09120



Thursday, June 08, 2023

Yesterday/All my troubles seemed so far away

Yesterday, Brendan, Michael, Gillian and I were told to wait in the family room while two nurses removed Rob's respirator - a clear tube leading to his lungs with some sort of bulbous attachment deep down his throat. We waited and waited and waited some more. Finally the nurse came for us and we followed her into Rob's room. He was in a near sitting position,  mouth open, his chest blessedly moving in and out! "He has to cough now," one nurse said. We all chanted "Cough, Rob. Cough" and showed him how.  Finally, finally, he coughed loud and clear. We applauded! In the evening, we toasted him with champagne. 

The pneumonia and sepsis have delayed Rob's healing. I am scared. He most often has a vacant look on his face. His eyes look through me. One day at a time. 

Monday, June 05, 2023

June 5, 2023

 I am finding it more and more difficult to write about Rob's trauma. At the end of May, he was sitting in a chair - the first time since his accident - and was beginning to communicate his discomfort and desire. I threw a sponge ball at him and he caught it and threw it back to me at least a dozen times with a pure Rob distainful expression. "Why are we playing this childish game?" 

And then, at the beginning of June, the hospital called. They had taken Rob to intensive care as he was having difficulty breathing. He had a pulmonary infection and his blood pressure was low. When I went in the next day, they explained that they had induced a coma and inserted a respirator, a food tube up his nose, and a number of thin clear tubes disappearing under the sheet. The doctor said Rob had pneumonia that led to sepsis. He looked frozen, grey, almost dead. The following day, he had more colour and the doctor said that he was responding well to the antibiotics. They were slowly bringing him out of the coma and reducing the level of the respirator to make sure he could breathe without it. He was. 

Bill told me that we sensibly could have a "guarded optimism" that Rob would return "whole". We cling to this but it is becoming more and more unlikely. 

Yesterday, we were told that the longer the respirator aided Rob's breathing, the less likely he would be able to breathe on his own, and the longer it would take him to recover: it must be removed as soon as possible. There are two possible outcomes. First, ideally, he would be able to breathe and return to the rehabilitation floor. They noted this is unlikely and today they added that he could catch pneumonia again. Second, his breathing would be too slow to support himself. They'd do everything to ease the pain but would not resusitate. He is too old. 

Michael is with me, Brendan flew in two days ago, and Gill arrived last night with Derek and Wilder. Tonight Jane and Sebastian fly in.


💕 

Wednesday, May 31, 2023

Preoccupied

Rob is trying to communicate though not verbally. Since, I wrote the last report, the hospital has him sitting, for a number of hours, in an upright padded chair and although it was good to see this, he was obviously hating it as he kept sliding down the seat and kept grabbing at the binding holding him in (around his crotch). When Michael and I returned yesterday, he was sitting up in a much more comfortable chair with an elevated leg rest (I was impressed) but after an hour, he kept patting the bed as if he wanted to lie down. He also kept pulling at his moustache as it was growing into his mouth as if to tell us that he needed a trim. 

No more mention has been made of inserting a valve into his stomach. I have seen him eat a whole container of apple sauce and some other liquid-gel stuff but refuse caramel pudding. I think he is simply showing what he prefers. (I am going to ask if we can bring him some food, like a pureed chicken soup). We also had a visit from the hospital’s microbiologist who requested that we wear a plastic apron and gloves when visiting to make sure that we are not carrying any bacteria that Rob couldn’t fight it at this time… She also said no to flowers or potted plants. 

Michael and I are a little frustrated as we don’t know which neurologist is caring for him. We have had no updates, no mention of the results of the scan and such. We did try yesterday to arrange a consultation and did speak to a neurologist who Rob has visited in the past, but he said that his colleague is looking after Rob. (And did we ask for a name? NO!) He did say that they are worried as Rob is sleeping so much. (I thought this was the way to heal the brain.) I had a restless night, couldn’t sleep, worrying about how to be kept up to date and such and so I asked a friend Eleyna who calls herself a hand-holder for English-speaking people having to navigate the French medical and legal system to help us. (I call her a cultural attaché.) Hopefully, we will learn more in the next few days. ❤️

Sunday, May 28, 2023

Ups and Downs

I had one happy day and one kiss that will have to last a week as the last two days have not been good. Rob had a potassium deficiency so the nurses put him on a drip and fucking hell, restrained his hands once again, forcing him  to lie on his back, unable to raise his arms. They promised to take off the restraints once the potassium drip was finished. Today, when I went in, he had a glucose drip and again his hands were tied (much softer bindings than the ones in Casablanca that were bruising his wrists.) Michael and I were told that we could remove the restraints when we are present and can watch over him so yesterday, I stayed six hours with a short break for a sandwich and cigarette. Today Michael and I are going to try a split shift so we can cover more hours.  

Michael had the doctor write down Rob's situation. “Subdural hematoma (around the brain). Hemorrhagic bruising intraparentrymatous (in the brain).” This is disrupting the connection of synapses which is causing the involuntary grabbing and such. As the blood moves out of the brain, the control will return.

More sobering still is that the flesh is literally hanging off Rob’s bones. (His arms and legs look like parchment and so I’ve been rubbing moisturising cream into them.) He has had little to eat in over a month and the doctor wants permission to put a tub directly into Rob’s stomach and feed him through it. I am despairing because I imagine that he will be tied down for the duration. The problem is that he cannot swallow soft food well and we are not allowed to give him water as it may go into his lungs.

Bev caught Bill, boarding a plane for home, and asked for his advice: "Well it’s a tough situation… because if he can’t swallow properly yet he could aspirate and then develop pneumonia which would be dangerous. If he isn’t getting adequate nutrition I can see the need for the stomach tube but pulling on it would be a disaster also. Oh boy… between a rock and a hard place. It’s a waiting game for his brain to recover yet not have him disturbed while healing. I don’t have an easy answer… "

I do know that Rob's recovery will take months and we will experience many ups and downs but sometimes the swinging makes me dizzy. Without a voice, during his recovery, it’s as if Rob is a child of mine: I hate to see him suffer so I try my best to ease the way for him but sometimes this is impossible.

Friday, May 26, 2023

"And then he kissed me"

Yesterday, when we arrived, Rob was lying on his side! I leaned over to say hello and he raised his arm, wrapped it around my head, pulled me down and kissed me on the lips!

During our visit, he kept squeezing my hand. He stroked Michael's arm, and touched his and then Michael's moustache. Still, he was restless and so Michael played his music. When John Prine's "Long Monday" came on, and Prine sang

Soul to soul
Heart to heart
And cheek to cheek
Come on baby
Give me a kiss
That'll last all week

I touched my lips. (I am still overwhelmed by the kiss.) There were other small signs that Rob was trying to communicate. He pulled at his pillow that was at an uncomfortable angle and at the neck of his hospital gown. (He did this in Casablanca too.) I am not sure if he's trying to say that he wants out of the hospital or, most likely, that he hates wearing clothes in bed. When he kept pushing his hospital bracelet down his wrist, the nurse cut it off and put it on his ankle. (She was amused that Rob then tried to reach down to his ankle.)

Today, Michael has left, with his computer, to try and work by Rob's side. I'm staying home to catch up on paperwork. Tomorrow I will spend the day with Rob. (I am hoping for another kiss.) 

Thursday, May 25, 2023

May 25, 2023, Castelnau de Montmiral, France!

 I am overwhelmed. Michael says that the French air ambulance doctor and nurse marched into the Casablanca hospital on the 23rd of May at 11:20 am, went directly to Rob's room, untied his hands, removed all tubes, transferred him onto a gurney, into an ambulance and with lights flashing and siren howling drove directly to Casablanca airport and onto the tarmac. During the flight, the doctor asked Michael about Rob, why he was in Morocco, what he had done for a living, and such. An ambulance met them in Toulouse and again with lights and siren, drove directly to Albi Central Hospital. Luckily I was in the lobby when they entered. Once they had settled Rob into his room, the ambulance doctor spoke to Michael and me about Rob's condition and soon after, the neurologist checked Rob and spoke to us too. We received more information than we had in a month in Casablanca. 

Michael and I visited the next day. Rob pulled at the collar of my blouse as if drawing me closer and it would be wonderful to think he knows me but I’m not sure as he is agitated and pulling on everything. (Is it any wonder after two ambulances and a four hour plane ride yesterday?) On a happy note, he is does not have his hands tied to the sides of his bed. He does not have oxygen tubes up his nose. He does not have electrodes stuck to his chest. Nor is he wearing support hose. He doesn’t even have a catheter. (When I asked the doctor about this, she said he didn’t like it.) After a few hours in his room, we felt such relief. The hospital staff have compassion for my poor confused guy. In Morocco, they had little. 

I am so happy to be home. 

Saturday, May 20, 2023

May 20, 2023

 If I weren't so weary, I'd be dancing jigs. Rob is leaving Casablanca on Tuesday, May 23rd at 11 am by air ambulance and taken to Albi CHU. Michael will be flying with him. I will leave the day before and bringing his heavy suitcase with me. A friend will pick me up at the airport. 

I am curious about how a French hospital or rehabilitation centre will differ from the two we've visited in Morocco. I am curious about Rob's reaction to the change. I hope he is given more mobility and that he heals quickly. 


Thursday, May 18, 2023

May 18, 2023

I have lost track of the days. I do have the occasional meltdown but I’m alright. Michael arrives this evening. I have not contacted the Canadian Embassy (though the tour company did) because, although Rob is a Canadian, we live in France. And what could they do? I think we are nearly at the end of our Moroccan adventure. Too bad our energy and emotions haven’t made us enthusiastic about exploring the largest financial centre and second largest port in north Africa. Brendan and I did visit Rick’s Cafe twice and found this tourist attraction (the decor a near match for the one in Casablanca, the movie) and the music a greater soother for our frayed nerves.  

I think after today, I will stop the daily report because there’s not much to report other than my frustration with the hospital. I do hope that the French rehabilitation centres are kinder and cleaner than the ones here. Yesterday, I was asked to leave the room when the nurses changed Rob’s bed. When I returned at the end, one nurse was spraying some disinfectant to the top of Rob’s sheet. (He hates the smell of ammonia or any household cleaning product so I don’t use them when he’s at home.) Rob pursued his lips in annoyance I’d say and then stared straight ahead and refused to look at me when I said his name. The only good aspect of this is that I could see Rob is still there although unable to say anything.

I hope our exit won’t take much longer. I’ll only write again when we know the air ambulance is booked and we’re on our way home.


Wednesday, May 17, 2023

May 17, 2023

 Nothing unusual happened last night. I didn’t ask if I was allowed but fed Rob yogurt and didn't force the watery soup into his mouth. My act of rebellion for the day.


Today at noon, Rob was slightly agitated but still his eyes were clear and he kept staring at me. I was surprised and pleased to meet the neurosurgeon who came into the room. He asked how I found Rob and I replied "sad". He said this is normal: he's been through a lot. He said that the cat scan done that morning showed that Rob was around 19% healed - a good advance - and it would probably take his brain six to nine months to recover. He agreed that a rehabilition centre would be ideal but another 2 or 3 days in the hospital could be useful. Brendan also heard from the insurance agent working on Rob's case and he, in turn, is working with an ambulance company outside of Bordeaux to find a facility for Rob. Brendan will hear from him this afternoon or tomorrow. 


I am once again feeling hopeful.

Tuesday, May 16, 2023

May 16, 2023

 

Brendan and I are fuming (as are Gill and Michael). The neurosurgeon in Toulouse (after 4 fucking days) said Rob does not need a hospital: he needs a rehabilition centre. So we were thrown off schedule once again and the insurance company has started afresh trying to find a rehabilitation facility. (How the hell does the good doctor know what Rob needs when he hasn't seen him? Bill says that he probably read the notes from the hospital in Casablanca but even he is a bit miffed when I tell him that Rob is still hooked to various tubes and still cannot communicate. 

My visits yesterday are a blur. Was it afternoon or evening, when five nurses came into Rob's room and pointed to the hand-binds and said I was not to remove them. I yelled that they were cruel or some such thing and, when I am with him, I make sure that he doesn't pull his tubes out and I always tell them when I am leaving. They didn't understand. When they left the room, I cried. One nurse returned and tried to touch me and I backed away from her. In reconciliation, she removed one band shaking her finger at me emphasizing that he must not touch the tubes on the other hand. (Who am I? A child?)

During the evening visit, a young male nurse who speaks a bit of English came in and asked me about trimming Rob's moustache and beard. I told him to trim the moustache to Rob's lip line and leave the beard because I prefer a full beard. (Rob is going to kill me as he prefers his goatee.) He asked if he should trim Rob's hair and I said no. I like men with ponytails. (Rob doesn't but he can get a decent haircut when his brain has healed.)

Today

I'm late at posting this so I'll add a note about my morning visit. Rob is much the same, slept through the first part of my visit and then woke. I spoon-fed him some gruel and thought of Elizabeth who could have made him something gently spiced and interesting. Towards the end of my visit, I called a nurse as he seemed agitated. She suggested I go downstairs and see Doctor Laura who I asked if she thought Rob needed a hospital or a rehabilition centre and she said "rehabilitation" although she would ask the neurosurgeon to have a look at him tomorrow morning. 

I mentioned the hand restrainers and she said several nights ago, when I left, Rob had pulled out all his tubes and could have injured himself. I said that I told the nurses that I was leaving but, apparently, in the two minutes it took one to get to Rob, he had created havoc. (I must say that I'm kind of proud of him. Who would like to be tied down with no way to scratch say an itchy nose.) She did bend a little and said that his hand could be untied for my visits but I must call and wait for a nurse before I leave the room. A small victory.

Sorry about going on and on about this: I suppose it gives me something to rant about and distract me from his helplessness and my own. 

Oops, I forgot to mention that Michael is flying to London tomorrow evening and probably staying the night and then flying either to Casablanca or Toulouse. The way it’s going, it will most likely be Casablanca. Sigh. 

Monday, May 15, 2023

May 15, 2023

 How long has this been going on? It's been 3 weeks, one day since Rob's accident. I have been here 18 days. Brendan arrived two days before me and now is doing the work to get Rob home from London. Too long!

During my noon visit to Rob, he was distant and unfocused. They had tied both hands again. His moustache was embedded with white globs of food. I played his music and when he dozed, I read. I imagine there will be many days like this.

During my evening visit, Rob was agitated. He tried to get his hospital gown off. When I untied one handcuff and managed to get one arm free, he tugged at the other side so I removed that as best I could but it was difficult with all the attached tubes. Guessing he was too hot, I opened the window. So he is managing to communicate. He kept staring at me as if to tell me something and trying to clear his throat as if trying to speak (?) but I cannot understand what he wants from me.  Again, I played his music.

Sunday, May 14, 2023

May 14, 2023

Sigh. It's Sunday and still no news about the flight to France (that was supposed to happen today) although Brendan and I tried our damnest yesterday to contact people who might help us secure him a bed in Toulouse. If I understand correctly, this is now the hitch to our leaving. (Sunday was the first day a plane was available. I wonder when is the next possible day.)  

Rob, wasn’t as lively as the day before yesterday. When I arrived at noon, he seemed agitated but calmed a little when I untied one arm and talked to him. I played his music. He drank water from a big bottle that I held and he grasped and tilted to his mouth. I brushed his teeth. (I wonder if French hospitals take more care with personal hygiene.) Time moves slowly. As much as I hate hospitals, I don't want to leave him until the visiting hour is up. 

In the evening, I took a taxi to and from the hospital.

I am angry. Some person has once again tied both Rob's hands to the side of the bed and he is agitated. Truly, it is only necessary to tie one hand and even then, as Brendan questioned, why can't they simply cover the electrodes so he cannot puill them off? I untied one gauze strip from the side of the bed and then, in an act of defiance (quite unlike me, believe it or not), I untied the armband that held it. I called the kindest nurse and explained (in French) that I was bad and had removed the band because I cannot bear to see him tied when he has so little freedom to move and stretch. Every time, I remove that damn handcuff, he stretches his arm numerous time above his head. He feels the oxygen tubes in his nose. He feels the stubble on his cheeks. He is able to tilt the water bottle to his mouth. 

I would like to know what he's thinking, what he's capable of doing, and what happens step by step as the brain heals itself. In brief, when will Rob regain his freedom.

Saturday, May 13, 2023

May 13, 2023

 May 13, 2003 


I still do not have confirmation that our departure day is tomorrow. Needless to say (though I'll say it anyway), I am angry, frustrated, anxious and there's not a damn thing that I can do about it. 

I went in yesterday and Rob was wide awake. They had moved him into a larger room with chairs and a sofa. The nurse who knows I hate his arms tied, untied them for the length of my visit and let me tell you, there is nothing weak about Rob's arms. He tore off the electrodes from his chest and the oxygen tube up his nose. I had a hard time trying to stop him and putting them back in place, apologizing all the while to him. When I held a water bottle to his mouth, he took it off me and tilted the bottle to his lips and drank. I cannot imagine how he feels. Most likely, he is more frusrated than I am. As if trying to tell me something, he squeezed my hand tight and pinched all around my face. (There’s life in the old guy yet.) 

Mohammed, a security guard from the hotel walked me to the hospital in the evening and waited an hour for me. 

Rob's eyes grow more focused, more intelligent every time I visit. His hands were still tied so I removed the tie on the hand that was bandaged protecting a needle leading to a vein. He didn't once try to remove electrodes or tubes and so I asked the nurse if she could leave that one hand free. I think she agreed. (Language is difficult. Everyone speaks Arabic, a great number also speak French, and a tiny number speak English. I am so missing Brendan.) This evening, I played Jesse Winchester, a folk singer whose soft voice and tender lyrics seemed to soothe Rob. I hated leaving him.



Magnetism

(After Sonnet 116)

   Pull between earth and moon, or chemistry,
   carries the swallow home from Africa
   to perch again on his remembered tree,
   the weeping birch by the pond. A star
   will guide his mate home in a week, perhaps,
   to the old nest in the barn, remade, mould
   of spittle and pond-sludge snug in its cusp
   as the new year in the mud-cup of the old.
   Loss broke the swan on the river when winter
   stole his mate while he wasn't looking. Believing,
   he waited, rebuilt the nest, all summer
   holding their stretch of river, raging, grieving.

      So would I wait for you, were we put apart.
      Mind, magnetism, hunger of the heart.
(Gillian Clarke)Sent to me from David Reid

Friday, May 12, 2023

May 12, 2023

 Another day has passed and still no definite date for departure although the insurance company say that it looks like Sunday. They are in the process of finalizing arrangements with CHU In Toulouse, but I am afraid to hope because every time I have, I've been disappointed.

This morning Brendan left to catch a train to the airport and a flight to London. He has missed Jane (who he will miss seeing by hours as she has to catch a flight to Mexico for work) and Seb beyond words so I am happy for him but I have to admit, a little sad for me. He has been amazing in so many ways - Bev calls him "a saint" -  while I have been an emotional mess. He communicates, in French, with the hospital staff and has taken care of all interaction between the insurance company and the hospital and more. (He has promised to continue from afar.) I feel vulnerable, without him, even walking to the hospital is a little scary as it's not in a safe area. (Later a security person at the hotel told me not to carry anything valuable on my person as I am easy target.) 

Rob remains much the same, and slept through both of my visits. Bill reassures me that this is normal, that his brain is healing itself. I take comfort in this and hope, amid his snores, that he is receiving some solace through the music I play in his ear and my chatter.


Long ago a work colleague told me she believed that life is hell, that we are literally in hell and that's why life is constantly throwing obstacles our way. I did a google search on quotes about hell and found one by Milton: “Long is the way and hard, that out of Hell leads up to Light.”

Please let there be light today! (And yes, I know that once we get Rob to France, there will be a whole new set of obstacles but hopefully hopefully hopefully they will be easier to bear. 

Thursday, May 11, 2023

May 11, 2023

 I feel as if I am on an emotional rollercoaster and I'm taking you on the ride. Yesterday Rob seemed foggier. He looked at us but did not respond - not even to music which is worrisome. The high and the low was the earliest that they can transport him (hopefully us) is Sunday and I was hoping for tomorrow at the latest. The high is the repatriation team is at work. 

At the end of the day, we still hadn't heard if it's a go for Sunday or not.

May 10, 2023 in Morocco

 Yesterday was a good day. Rob looks healthier every day that passes but we have yet to see him move more than his head and limbs. One sweet nurse unties his hands when I am there because she knows I hate it, and she asked Brendan what music he's playing for Rob and looked it up on her iPhone so she could play it for him too.


Our consultation with the good doctor was short. Rob's aneurysm is not a problem and he is safe to fly.  The report will be sent to the insurance company within the hour.  A few hours later, Brendan confirmed with an agent there that they had received it. Yes. They were waiting for confirmation from their medical team and the repatriation were already busy organizing Rob's airlift. 


Both Brendan and I are excited but cannot celebrate until we hear all is in place and given a time and date for Rob's flight. I think but I am not sure that I can fly with him. The agent said it could be as soon as today or tomorrow.  And so we wait.

Tuesday, May 09, 2023

May 9, 2023 in Morocco


Yesterday was bleak. Brendan and I arrived to find Rob's hands, once again, tied to each side of the bed and oxygen tubes up his nose. He slept through most of our visit (even when Brendan trimmed his moustache). 


Our consultation with the doctor upset me further. The neurosurgeon wants to do yet another specialized test to confirm that Rob is okay to fly and if not, the coil operation would have to be done in Morocco and could take some time to arrange. My heart sunk. 


When we returned in the evening, the nurses had moved Rob from his light-filled room to a darker smaller cell. He was still tied and plugged. We talked to him, massaged his hands and feet, and played music as he drifted in and out of sleep. The one bright instance was when he squeezed my hand so hard, it hurt. 


As we left, we were told that either the test or the analysis of the test (Brendan didn't quite understand her French) would happen in an hour. We will hear the result today at noon. Hopefully. 


The above is the update that I send my sisters everyday and copy and paste on my blog but here I will add a little more. We waited over an hour for our consultation. Below is the scene that I discreetly photographed with my phone and, if I could have moved to a better vantage point, you would see how many more were waiting. I cried with frustration - literally - after the meeting and tripped on my pants and fell outside the hospital though I didn't hurt myself.  (This becoming less physically agile with age is damn annoying.)


I am careful walking the ten minute walk to the hospital as the sidewalks are rough with all sorts of strange obstacles protruding through its surface. Crossing one major road en route also demands caution as apparently it is not necessary to obey traffic lights and cars whiz through red lights passing within inches of pedestrians. 

I wish I had the stamina to sightsee a little, especially a Moroccan outdoor market, or go to a museum or a mosque but I cannot untie the knot in my gut. 

There are feral cats everywhere. Some are dirty scrawny little things and others are luxurious. When Brendan and I, as a last resort or perhaps for a taste of home, went to MacDonalds the other day, we sat inside and beside me on the bench stretched a dark brown feline with white accents catching his afternoon nap. My presence didn't faze him. 


Moroccans prefer cats to dogs. I have seen hundreds of cats and two dogs in my 11 days here. Brendan read that if you whisper a wish to a cat and then feed him, your wish will come true. As farfetched as this seems, I whispered to one asking for Rob's wellbeing. 

There is something else here that I don't understand but has touched my heart. When Rob was on the fifth floor in intensive care "reanimation" in the hospital, a patient died and everyone in the waiting area dissolved into tears in communal grief, myself included. One woman who for some reason always nods and smiles at me, and makes sure I get into the ward first, handing me a blue gown, hugged me tight. Although I talked to her in French, she did not understand me. I assume she only speaks Arabic. I see her less these days since Rob has been moved to the less intensive care on the fourth floor but when she sees me, she rushes over and kisses me several times on the cheek. For some reason, this is reassuring. She identifies with my angst? For some reason, I think of her as a friend. 

At Brendan's advice, I put a small statement of Rob's accident on Facebook. He thought Rob's friends should know, especially those who get in touch with him regularly and will hear nothing. He has received over a hundred well-wishes, expressing concern and I see how loved he is. I said something to Brendan about how Rob will be less a grouchy old man and more loving when he is through this, and Brendan said that we will be more loving toward him. I agreed. 

 



Monday, May 08, 2023

May 8, 2023 in Morocco

 Our morning visit was quiet and passed as usual but our evening visit made me want to weep. When we first arrived, I stood at the side of Rob's bed near his head and took his hand. He squeezed my hand hard and lifted his other hand and stroked my face. He knew me! I still want to cry when I think of that moment. Michael FaceTimed and once again Rob lifted his hand and touched the screen. Brendan played a short video of Fauci, our cat and showed him a series of photographs of his grandchildren and children and Rob's eyes never left the screen. When Brendan played him a little country, a little Motown, he raised his fingers and moved them as if he was asking for something but we didn't know what. (I wish I knew sign language.) Towards the end of the hour, his eyes closed. We left him to sleep. 


Another bright moment yesterday was when the insurance called Brendan. (It is usually the other way round.) The man in charge of Rob's case said that it was nearly complete, just a few more questions for the doctor, and his airlift would be arranged. 


Today hopefully we will learn more. 

Sunday, May 07, 2023

May 7, 2023 in Morocco

 We visited Rob around noon. No oxygen tubes up his nose and no heart monitor. The nurse said he was awake earlier and ate. As I understand it, he is being observed this weekend and Brendan and I will have yet another consultation with the doctor on Monday. So more waiting. During the evening visit, we saw a small miracle. Rob appeared calmer and we did our usual - me massaging Rob’s hands and feet and Brendan playing music. Brendan then thought to FaceTime Gill and when Gill said, “Hi Dad”, Rob turned his face to the screen. Then Gill put Wilder on the screen and Rob lifted his arm and, with one finger, touched Wilder’s face. He did this two or perhaps it was three times. (Bill said this was definitely a good sign.) 

Wilder’s other grandmother, Lisa sent information that might help Rob. She suggested that we get in touch with her nephew Vitas who is in the medical profession. Vitas, in turn, offered to get in touch with a colleague in France who has a friend in Switzerland who is Moroccan who might be able to help us navigate the hospital scene in Casablanca. Everyone wants to help...

And so we begin another day with a little more hope.

Saturday, May 06, 2023

May 6th, 2023 in Morocco

I’m tired. I want to go home. Brendan suggested yesterday that I go home and he’d stay but I cannot leave Rob. I suggested Brendan go home as he is anxious about Seb but he said that he could not leave me. Our noon visit to the hospital started well enough. We saw Rob, looking alert, being fed through a cylinder - I think it’s called a feed tube. The nurse pushed the plunger so a small amount of the blended food entered into Rob’s mouth, he chewed and swallowed, and then she gave him more. She held a bottle of water to his lips and he drank. Rob closed his lips tightly when he had had enough. When the nurse left, we talked to Rob and Brendan played music but he did not respond. We then went for a consultation with the doctor. She began with “there’s been a new development”. The neurosurgeon, on whim, decided to  order a CT angiogram and it uncovered a deformation on the artery in the brain (an aneurysm). She said that if the aneurysm  is small, it’s not life-threatening but if it’s large, it is and should be operated on asap. I asked if the operation is dangerous and she said it is relatively simple. A coil (endovasular coiling) would be inserted into a vein in Rob’s arm and led to the brain and coiled into the aneurysm. She then called the neurosurgeon for his report and he said that he had only received a written report but, in his opinion, the operation should be done in France. When he sees the actual scan, he’ll be able to advise better. We waited the whole afternoon, heard nothing, and so headed back to the hospital for our evening visit with Rob. Thankfully he was looking more alert and made eye contact with us but it’s impossible to say whether he recognized us. I again told him who we are and Brendan played music. This time he responded immediately, tapping his fingers and moving his feet to the beat. When Brendan stopped, he raised his hand as if asking for more. Brendan put more music to his ear and he closed his eyes and began once again to tap his fingers. When we left, Brendan stopped at the nurse’s station and took photographs of the new scans and reports and sent them to Bill. We picked up a pizza on our way back to the hotel and ate, and drank a bottle of red wine in Brendan’s room, watching the movie “Casablanca”. And so begin another day hoping that arrangements will be put in place to airlift Rob to France. 

Thursday, May 04, 2023

Rob's Fall in Morocco and Reanimation

April 26, 2023

I learned last night that the second day of his Moroccan food trip,  Rob fell down a flight of stairs and hit his head. He was taken to a local village hospital in Moulay Idriss, before being transferred to a public hospital in Meknes for further tests. He was then relocated, this time to a private hospital in Meknes. He has been in and out of consciousness for three days. (His Intrepid group or rather the manager of the company in England was only able to reach me last night as he was calling the house phone that we rarely answer.)  He told me that Rob's condition is stable and it would be a good idea to call Rob's insurance company and the doctor for more information. I telephoned Brendan and he, quicker to take action than me, immediately arranged a flight to Fez.

The next morning, I called the doctor. His English was hesitant although I did understand that Rob has a traumatism to the brain and there was some bleeding in his head but he’s now out of danger. He will have to stay in the hospital for a few days. 

(I am amassing the details of Rob's accident 13 days after it happened so I laugh at the "few days".)

Brendan expected to find Rob badly bruised but not the father he saw. Rob was much much worse than he expected, upsettingly so to say the least. He telephoned me. I telephoned my sister whose husband is a doctor. Bill said that he had a friend who is a neurosurgeon and for Brendan to send as many medical reports that he was able to copy. Brendan took photographs of the CT Scans and all the doctor's notes and sent them to Bill. 


April 27, 2023

Bill's response email read "I have had a lengthy talk with my good friend Cameron McDougal and we have gone over the scan results in detail etc. We are concerned about the language issue and he did have some bleeding into the left temporal area which is important for language which could be an issue long term. His cognition should improve with everything else.

Cameron said that he wouldn’t have operated for an injury of this type and the good thing is that things have been relatively stable between the two scans as far as we can see.

He has a long road to recovery for something like this and it would be in the order of months instead of days and weeks although it is still “watchful waiting” and we can be surprised either way.

As an older person the brain is more vulnerable to injury and hence the recovery is longer and the injury more significant."

When Brendan visited Rob a second time, he sent me a message saying that Rob is still fragile but so much better. When he told Rob that I was coming, he "responded well". (This will be the most lucid Rob has been to date.)


April 28, 2023

This is the day that I flew in. I should have been in Fez at 6 pm but the flight was four hours late.

 Brendan was waiting and he drove to Meknes and I checked into the hotel that he had switched to, walking distance to the hospital. Although it was late, we visited Rob - or perhaps it was the next morning. I cannot remember. I must have been in shock when I saw Rob as I have no recall of my first impression. While at Toulouse airport, Brendan had messaged me that Rob "is talking but can't hold a thought. Does not know who I am. The doctor said that confusion and lucidity will come in waves." I do remember that Rob looked at me but did not see me. 

Brendan has been back and forth with the insurance company (and will continue to be). At this point in time, the big problem is that the hospital is not sending the company reports in a timely manner. He told them that he is not happy with the care Rob is receiving.

Brendan did drive to the small inn where the accident happened. He took pictures of the stairwell where the accident happened and he was able to get footage of Rob walking down the hall, just before the accident. He also thought to take pictures of the inn's license which will later prove helpful for the insurance company. I don't think I could have handled half of what Brendan has been doing. His foresight and managing of this difficult situation for all the family is truly magnificent.  


April 29, 2023

The insurance company arranged an ambulance to take Rob to Casablanca to a more modern hospital and Brendan and I foolishly took the train and we arrived at 10:30 pm. We grabbed a taxi to our airbnb apartment but it was  so horrible, we left our bags and walked to the clinic.

I felt like bursting into tears when I saw Rob. He looked terrible and appeared to be really agitated. I talked to him and so did Brendan and he was able to say one word “help”. (And how painful it is that we can do nothing to help him.) 

A lovely nurse who spoke English said he was just tired and wanted to sleep. They have his hands tied at each side of the bed so he won’t whip the tubes out. He kept moving his legs as if he wanted to get out. He was better than this morning but not as good as several days earlier when, Bren saw him and he was able to say a few sentences. We didn’t stay too long as it was late and we left Rob to sleep. I asked the nurse if the trip by ambulance upset Rob and she said no. 

Brendan booked us online into an Ibis (known to be reliable) down the street from the clinic and he took a taxi, got our bags from the shitty apartment and we are now settled in two decent rooms. 

We cannot see Rob until noon tomorrow. Sigh. We are hoping to see the doctor and hear his or her prognosis.


April 30, 2023

We finally got to talk to a doctor who said Rob's brain trauma could be caused by one or more of four things and a neurosurgeon will look at him this afternoon. We can visit again at 6:30.

This doctor said that there is no reason why Rob cannot fly home under medical supervision on a depressurized airplane. 

Rob seems better today though not great. HIs colour is better but they have an oxygen mask over his nose and mouth making it impossible for Rob to talk but he did open his eyes and he seemed to be able to focus. For some reason I feel lighter.


May 1, 2023

No news really. Brendan and I went to hospital last night and the light in Rob’s room was dim and he appeared calmer. We talked to him and he did open his eyes as if in recognition but when I asked him to squeeze my hand if he understood that it was me, he didn’t. We did see the doctor but he said that he had yet to talk to the neurosurgeon… and so it goes. Everything takes so long here and it’s driving me nuts. For example, a sign says visiting hours start at noon but you must wait until they decide to open doors to ward and could be an hour later.

The big deal is to get the insurance company to get him back to France. Brendan will call them this morning.


May 2, 2023

Brendan and I are frustrated with the comunication. He was on the line twice yesterday with the insurance company. They are doing their best to fly Rob home but need reports from the hospital. When we asked the doctor a second time about flying Rob to France, he said that they would do a cat scan today or tomorrow. 

Rob seems to know that Brendan and I are there. When we say his name loudly, he turns his head. His eyes appear to be looking at us. His hands are loosely tied to each side of the bed so he won’t pull his tubes out. Everything is done intravenously through tubes into his neck. He has an oxgen mask covering his nose and mouth. I massage his hands and feet. On our second visit yesterday (we are allowed in two times a day for an hour - at noon and 7 in the evening) Brendan played music on his iphone and held it to Rob’s ear and Rob tapped his hands to the beat. (When we arrived, we both took one of his hands and he was squeezing both of ours hard.) His mouth through the mask looks dry, chalky and how I would like to wet his lips but cannot because of the mask. We are not convinced that he’s getting the best care. For instance, we asked about the neurosurgeon’s report and were told that he doesn’t need to operate… and on it goes. We need to get him home.


May 3, 2023

There has been no real medical information about Rob’s progress or lack of it until our noon visit to the hospital. I think the reason is that Rob was brought to Casablanca on a weekend and Monday was a holiday. We had a prognosis session with a doctor (who spoke English) for the first time who gave us an overview of Rob’s case and reason to hope. She had the results of a new cat scan and was waiting for a report from the neurosurgeon and then she would send a report through to the insurance company. She said she spoke to Rob in English and he responded well to all verbal commands and stimuli. There is a small improvement. Hallelujah!  Also, his eyes were clearer and he seemed more relaxed.) She mentioned that it might take another week or more before Rob showed any real improvement. She also said to push the insurance company to have Rob airlifted home when Brendan said he had a small child and responsibilities at home and I know he doesn’t want to leave me here alone especially in this area near the train station. (A young man stopped us and told Brendan not to carry his cell phone in his hand as it could get snatched from him.) In the evening we returned to see Rob and he looked more himself and once again was tapping his fingers to the music Brendan played.  Hopefully today is a good day and we’ll receive word from the insurance company although, we’ve been told, that they are slow to organize an airlift as it isn’t cheap. I’m still hoping!


May 4, 2023

We are one step closer to getting Rob home and yet this morning I am filled with despair. Yesterday we went to visit Rob at noon and once again we had to wait in a small antechamber to the emergency ward. As usual it is crowded and I am beginning to recognize faces. One woman is crying and a few others are trying to console her. The head doctor rushes through and then she brings the family of the woman crying through the door and everyone is wailing. We are told that someone has died and there will be no visitors until evening. 

We return to find Rob starring fiercely, eye wide open. Brendan talks to him but Rob doesn’t respond. I put cream on one hand and massage it. His finger nails are dirty. He would hate it. I go to do the other hand and it is bound too tightly and I try to loosen the gauze strip and the nurse enters. I ask her why it is so tight and she says that Rob was agitated earlier. I want to cry. She removes it and Rob stretched his arm over his head and then scratched at the places where tubes are taped. I am sure it was a relief . And then while I massage his feet, Brendan plays some more of his favourite music. We are happy to see his fingers tapping. We talk to him for around an hour until we are kicked out. We need to get him out of here. We need to be able to spend more time with him. Hopefully today we will hear that arrangements have been made to repatriate him. The people are lovely here, very kind, but this is not a good place to be at the moment. 

Today, I am going to take a cut lemon, some wet towels and a file and clean his nails. Hopefully we will find all is in place to bring him home, and get I am having a hard time being optimistic. 

Sadly to say, I am smoking like a fiend. 


May 5, 2023

This is the 14th day since Rob hurt himself. Yesterday when Brendan and I arrived at the hospital, we were told to go a floor down. It is still intensive care but less intense than the floor above. We found Rob in a light-filled room and happily not bound to the bed. Although he looked better, he was starring straight ahead, expressionless. Brendan left to talk to the doctor and I remained, rubbing cream into Rob’s hands and feet, talking to him slowly, pouring water into his mouth, small capful by capful (as advised by the nurse). I tried to clean his nails with a lemon but I am going to have to buy a manicure tool. When Brendan returned after seeing the doctor with no real new news except he promised to get yet another questionnaire requested by the insurance filled and sent, Brendan tried playing a selection of Rob’s favourite music in his ear - still no response. This is so disheartening. As we were leaving, Brendan was given a new prescription drug that might help with the trauma and immediately had it filled at a pharmacy down the road and returned it to the nurse’s station. In the afternoon, Brendan checked in with the insurance company and was told that it had received the reports and were in the final stages of approving Rob for an airlift to France. And on it goes. Our evening visit to Rob was also disheartening. He responded to nothing and kept slipping in and out of sleep. Every visit to the hospital has me hoping to see some small improvement but I feel we’re slipping backwards not forwards. 

 


Monday, April 24, 2023

Struggling with Self

 Will I ever write again? I think about it a lot and avoid doing anything about it! I have withdrawn into my self for too long. It hurts to write but not writing hurts too.

Every poem was a secret
struggle with himself,
every secret was a struggle,
a handwritten scrawl,
something joyous
or terrible,
a fragmentary
blood-soaked message
wrenched out of his body,
a longing for
some impossible harmony
tucked into a bottle
and tossed off the side of a cliff.
Reckless love poems, shocked elegies
drafted against death
looking for God—
some of them shattered
in desperation
on the rocks below,
but others, like this one,
bobbed away
on surging blue waves
for someone to find them.

by Edward Hirsch

Friday, January 06, 2023

Happy 2023

 I have been travelling for nearly six weeks and am newly home and luxuriating in the quiet, the richness of being in my own space. For the first time since my return, Rob has taken off for the day.

I wrote a small Facebook post for the new year:

I left home on November 25th and return today, January 2nd, 2023. I am filled to the brim with wonderful memories. And thank yous to my children (and their spouses and my two brilliant grandsons), my siblings, and friends for their loveliness to me.
I steal my New Year's wishes from a master of New Year's wishes, Neil Gaiman:
"May your coming year be filled with magic and dreams and good madness. I hope you read some fine books and kiss someone who thinks you're wonderful, and don't forget to make some art -- write or draw or build or sing or live as only you can. And I hope, somewhere in the next year, you surprise yourself."
"And, most importantly (because I think there should be more kindness and more wisdom in the world right now), that you will, when you need to be, be wise, and that you will always be kind."

I have started the new year unpacking (nearly complete) and reading "A World of Curiosities" by Louise Penny and just came across a section that pleases me. The painter character of the novel is painting, slashing colour onto a canvas. She notes that she is inspired by a witch from the 1600s:

"She was punished for many things, including being happy. So I wanted to capture that. The power of it. Happiness as an act of defiance. A revolutionary act." 

It is 14:15 in the afternoon and I am still in my nightgown and don't intend on dressing today - such a small thing and yet it makes me happy. I often do what I think I must. I like the too rare moments when I take liberties from the usual and expected. An act of defiance.